took place this morning my appointment with Dr. C, the specialist who follows me for Blood Diseases. Philippe was with me, four ears were better than two. Malika, the psychologist, the doctor had seen before and we seemed to have informed on our expectations. We wanted to know, out of confusion, understanding why I was asked to repeat a recent review.
We arrived in consultations at 10:00. Very quickly, the doctor has received, the time of an interview that lasted nearly an hour. Attentive, quietly, gently and available, he answered all our questions.
Justifying first "failure" of the prior review by a technical problem, the doctor is coming to the facts before our insistence: the results should be checked because indeed, they have demonstrated an "positive "Which might suggest that the disease is re-emerging while in the previous samples, the disease was undetectable. That is a suspicion of relapse which we speak. Dr. C. explained that this result is surprising because my type of leukemia generally has a good prognosis for this relapse are rare. He added that errors sometimes occur ("false positive" unfortunate exchange tubes for analysis ...). Nevertheless, the anomaly detected a molecular point of view requires that a control is achieved. We will be two tests: the classical blood test (CBC, plates ...) for which I get a result in the day and a new residual disease for which I will set in 15 days.
It seems there is no time for the blasts in the blood. But if the bad result is confirmed from a molecular point of view, it will then proceed to a myelogram at regular intervals to see if there are diseased cells in the marrow. If so, it means that my treatment was ineffective. We therefore redo a course of induction which will this time followed by a transplant (I at least have the advantage of having a brother compatible). If there are no blasts, it is considered a "small relapse" and should be monitored simply. The third scenario would be happier than to nullify the result that was obtained from a molecular point of view.
Auscultation fast: SIR!
As it stands, he must wait. Relapse / no relapse, the doctor determines the probability to 50%. We will wait for his call at the end of the month.
50%, that's what keep the doubt! But at least, the veil is lifted on the reasons why my hematologist to call me two days ago.
In a very strange, I'm calmer now, less pessimistic that two days ago. There are several possible futures, even the wrong side of the scale.
Furthermore, no rush! Dr. C. I called in the afternoon to give me the numbers count. They are stable for three weeks and we can "go on vacation alone," he said.
And that's not bad, is not it?
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